My son's heart

[Michelle]

Hi,
I hope it is ok to put this here, if not I'm sorry!
I know a couple of you know my son was born premature with a very severe heart defect. He only had a 15 % chance of surviving at birth, with the surgery.
He had transposition of the great vessels, for those of you that know what I'm talking about, lol.
Well, a year ago March at our regular cardiologist visit they noticed one of his ventricles and septum wall, (between the two ventricles) weren't working properly. Well, they restricted him from playing, recess, sports, etc. until they did all of the tests to make sure it wasn't life threatening and lifted his restricting.
Well, it seems like shortly after that he has had several chest pains, they keep getting closer together and worse as time goes by.
A couple of weeks ago, he was outside playing and my other son ran in and said he was laying down crying that his heart hurt. Well, at that point, that was the most severe it had ever been so I called the ambulance and took him to the ER. Well, our cardiologist was on call that night and sent us home. One week later, the Sat. of Easter weekend we were at an Easter egg hunt at a church and his heart got so tired he "fell down and fell asleep", his words. I couldn't find him because he was up on one of those inflatable slides, up in the corner where they turn from the ladder to the slide. I kept yelling for him and he wouldn't respond at all, so after a few seconds and a few yells I tried to climb up an get him and push the button on the monitor he wears. Well, all I remember is I had a hard time getting to him and cannot remember for the life of me how I got him down.
Anyway, as soon as I pulled him out and got him in the sun, I saw his face was BLUE, his lips were as white as his pale skin and blue in the corners. I asked people to call 911 and we laid him inside on the couch and it was really hard to get him awake and keep him awake at first, but finally we did. Well we ended up spending a week in the hospital with no real answers, except that we are switching cardiologists!!!!
We are arranging for him to go to Children's Hospital either in OKC, St. Louis, Houston or Boston.
It is looking like he is going to need a pacemaker to get his heart back on track. His little heart hasn't been the same since that Saturday.
I hope it is ok to post this here, I wasn't sure, if it isn't just let me know, Lis!!
Any prayers are welcome!!! I do know they work, if they didn't my son wouldn't have spent the past eight years here on Earth with me!!!!

[Debbie Mancini-Wilson]

Michelle,

Although there are so many words that I want to say to you about how I feel for you right now, I believe that this is not word-worthy; it is only prayer-worthy. And so those you have. I am so very sorry for you and your family, and only ever so feebly offer you my heartfelt prayers and long-distance support. Dylan's soul will shine on you forever, and I hope that someday soon you will find comfort in that. But for now, I hope you find comfort in the loving energy coming your way.

((HUGS))

[Karen Nowicki]

Dear Michelle,

I acknowledge your strength and willingness to share Dylan's passing with us. It is difficult to find words to express what I want to say. I am praying for you, your family and friends. Dylan has touched my heart in a profound way through your sweet description of who he is and the struggles he recently had. Blessings!

[Kathleen W.]

Michelle, I am so sorry for the loss of beloved son. I cannot even imagine what you must be going through. Please know that you and your family are in my thoughts and prayers.

Most Sincerely,
Kathleen

[Farmer's Wife/Glass_Half_Full]

Oh My. My heart is breaking for you. Michelle, words just can't reach value of what you are going through. I've had a friend who lost a child; it's unimaginable. I can't hold back the tears. Our hearts are with you.

[Keith Rispin]

Michelle, I am so terribly sorry about the loss of your Dylan. I only wish I had something of comfort to say but all I can muster is, I am so very sorry.

Keith Rispin

[Beth LaMie]

Michelle,
Words fail me in trying to offer you comfort. I am so sorry for all that you have been thru. It sounds like your son fought a courageous battle. I will keep you and your family in my prayers in the hopes that you will find some peace.

Sincerely,
Beth LaMie

[Haley Montgomery]

Michelle --
I am so sorry to hear about Dylan. I don't know what to say except I am so sorry for your loss. I pray that God will comfort you and your family in this time as only He can in this season of heartbreak.
Haley Montgomery

[Kathleen]

Oh Michelle I'm so sorry for your loss. I haven't been checking Grow Together much so I missed all the conversations about your son. This must be a really tough time right now, take some time to grieve, we'll be here when you're ready. HUGS

[Robin]

I'm so very very sorry for your loss. I'll be holding you all close in my heart.

Robin

[Debbie Mancini-Wilson]

Michelle,
You touched me so deeply that I could not find words earlier; however, in a moment of silence, I wrote the following to you the best way I know how. And so, I send you this poem with love.
-Debbie

Each tear that falls from my cheek
Represents a fragment of the pain for which you weep
…And yet,
I’ll never truly know how deep

Each tear that falls from my cheek
Is an offering from my soul to yours
…And yet,
can only lend support from distant shores

Each tear that falls from my cheek
Falls, not knowing what you face
…And yet,
your pain, it hopes to embrace

Each tear that falls from my cheek
Is accompanied by a prayer
…And yet,
is destined to meet your despair

Each tear that falls from my cheek
Knows not what it will bring
…And yet,
It is sent upon a wing

Each tear that falls from my cheek
Knows a bit of the hurt you feel this day
…And yet,
hopes to comfort you in some way

Each tear that falls from my cheek
Joins many others in a shower of rain
…And yet,
does not truly know your pain

Each tear that falls from my cheek
Carries energy of its own
…And yet,
it tells you, you are not alone

For each tear that falls from my cheek
Is merely a reflection from above
…And yet,
is right here for you in another mother’s love

~Debbie Mancini-Wilson

[Mommy Meryl]

Michelle - thank you for sharing with us. I was so very very sad to read about your loss. My heart goes out to you and your family.

Michelle said:

Hi Lis and everyone,
I'm sorry I haven't been on here lately. Dylan passed away on Saturday May 9th. We were walking down the sidewalk by our house and he had to lay down in a neighbors yard to rest. As he was laying there he quit breathing and his heart stopped and we couldn't revive him. We were supposed to go to Oklahoma City for his appt. today, the 14th, so today is really hard for me. If it wasn't for my other two kids and the anger I have for the doctors I wouldn't have the strength to go on. I won't get into all of that right now, but I just wanted to let you know.
If any of you are on facebook, I've been trying to update it at least once a day.


http://www.facebook.com/home.php?ref=home#/profile.php?id=726625085...


Thank you all for your prayers!!!!!!

l Love You and Miss You so much Dylan!!!!!

[adoptioncoach]

Oh Michelle, I wish I lived closer to you. This is the most devastating news, I am so, SO sorry for your loss. Poor Dylan having gone through so much pain and discomfort during his time here on earth, and you were just starting on a new path for treatment...I know words are not enough to convey the depth of sorrow I feel for you and your family at this time. But please know I will go light a candle for him today and pray for you and your family.
I am sending you a huge, supportive "mom-to-mom" hug and want you to know we are ALL here for you.
With much sadness
Meg